A Picture Is Worth a Thousand Words—Using Photovoice to Unravel the Caregiving Experiences of Parents of Children With Special Education Needs

AIMS: To explore the perceptions and experiences of parents raising children with special educational needs, focusing on the impact of the COVID-19 pandemic and its aftermath. DESIGN: A descriptive qualitative approach was conducted using a photovoice design. METHODS: Individual interviews were conducted with 17 parents of children with special educational needs. These parents were asked to take photos that reflected their caring experiences of their children, especially during the COVID-19 pandemic, and to add captions to each photo. Data were analysed using an inductive thematic analysis. RESULTS: The analysis revealed four themes: flashbacks of COVID-19 memories, impacts that last beyond the pandemic, lessons learnt, and services needed. Our findings suggested that the experience of life under lockdown during the pandemic has created lasting memories for parents. It has had positive and negative impacts on family relationships and children's learning, extending beyond the pandemic's immediate effects. Despite their numerous challenges, parents expressed gratitude for discovering their own solutions, recognising the importance of quality time spent with their children, and acknowledging the growth experienced by both their children and themselves. However, they also emphasised the crucial need for comprehensive and continuous psychological support and services to be provided to them. CONCLUSIONS: This study sheds light on the unique caregiving experiences of parents raising children with special educational needs, particularly during the challenging times of the COVID-19 pandemic and its aftermath. It revealed both positive and negative aspects of their experiences, offering a new perspective on their caregiving journeys and highlighting their ongoing needs. IMPLICATIONS FOR THE PROFESSION AND/OR PATIENT CARE: It suggests the need to consider the well-being and needs of parents who engage in complex caregiving-children interactions at home. IMPACTS: Insights gained from this study serve as a foundation for community service planning and developing supportive interventions that recognise the unique needs of parents of children with special care needs, ultimately improving the overall quality of life for parents and their children. REPORTING METHOD: The study followed the Consolidated Criteria for Reporting Qualitative Research guideline. PATIENT OR PUBLIC CONTRIBUTION: No patient or public contribution.