Metachromatic leukodystrophy (MLD) in France: the views of family caregivers on the diagnosis of the disease, its daily burden on their child, and the whole family

Archives de Pédiatrie 2026

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Authors: Elise Yazbeck, Magalie Barth, Audrey Boyer, Catherine Caillaud, B. Chabrol, Jean‐Hugues Dalle, Bénédicte Héron, Karine Mention, Magali Pettazzoni, Sylviane Peudenier, Anne‐Lise Poulat, Marieke Podevin
+8 more Hélène Rochereuil, Agathe Roubertie, Catherine Sarret, Elise F. Saunier-Vivar, Gaëlle Thomas, Marie Therese Vanier, Pascale Vincendon, Caroline Sevin
DOI: 10.1016/j.arcped.2026.105483
Cited by: 0
References: 19

Fields of Study & Subjects

Lysosomal Storage Disorders Research Metabolism and Genetic Disorders Family and Disability Support Research

Publication details

Journal / source
Archives de Pédiatrie
Volume
33
Issue
3
Pages
105483–105483
Publication date
27 February 2026
Language
EN