P089: Identifying the barriers and facilitators adolescents and young adults with cancer predisposition syndromes face during transition to adult care

Genetics in Medicine Open 2026 Open access

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Authors: Natalie Ceelen, LilyAnne M. Grieve, Kelly Taylor, Laura Howell, Paige Turner, Rose B. McGee, Stacy J. Hines‐Dowell, Leslie Taylor, Lynn Harrison, Katianne M. Howard Sharp, Kim E. Nichols, Melissa R. Perrino
DOI: 10.1016/j.gimo.2026.103580
Cited by: 0

Abstract

Genetic cancer predisposition syndromes (CPS) significantly increase an individual’s risk of developing cancer, oftentimes at young ages. Syndrome-specific cancer screening regimens have been created to identify these cancers at early stages. This screening may be life-long, and as these patients age, they must undergo a meaningful transition from child-centered to adult-oriented healthcare to maximize the likelihood of medical follow-up. To improve continuity of care, many specialized pediatric clinics are developing formal transition programs that guide adolescents and young adults (AYAs) into adult healthcare.

Fields of Study & Subjects

Adolescent and Pediatric Healthcare Childhood Cancer Survivors' Quality of Life Family Support in Illness

Publication details

Journal / source
Genetics in Medicine Open
Volume
4
Pages
103580–103580
Publication date
1 January 2026
Language
EN