P251: A retrospective exploration of healthcare communication with adult siblings of individuals with Down syndrome over time

Genetics in Medicine Open 2026 Open access

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Authors: Madelyn Falk, Stephanie Santoro, Victoria Suslovitch
DOI: 10.1016/j.gimo.2026.103745
Cited by: 0

Abstract

Siblings of individuals with Down syndrome (DS) play significant roles in their siblings’ lives, providing support, companionship, and advocacy. However, the distinct experiences of siblings in healthcare settings remain unassessed, including the long-term impact of healthcare provider (HCP) communication. This study addresses this gap.

Fields of Study & Subjects

Patient-Provider Communication in Healthcare Down syndrome and intellectual disability research Family and Disability Support Research

Publication details

Journal / source
Genetics in Medicine Open
Volume
4
Pages
103745–103745
Publication date
1 January 2026
Language
EN