A qualitative study on feeding experiences among caregivers of children with cerebral palsy requiring food texture modification

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Authors: Sakinah Kamal, Nur Hana Hamzaid, Sazlina Kamaralzaman, Shobha Sharma, Nurul Hazirah Jaafar, Phei Ming Chern, Nurul Izzaty Hassan, Hasnah Toran, Noor Akmal Shareela Ismail, Ghazali Yusri, Muhammad Syahril Mohd Nazley, Nur Amira Adila Zaidi
Cited by: 0
References: 45

Abstract

Background and purpose Children with cerebral palsy often experience feeding difficulties that require food texture modification and are highly dependent on their caregivers, which commonly lead to malnutrition. This study aimed to explore caregiver's current practices, perceptions, challenges, and ways to overcome the challenges through provision of food texture modification. Methods The inductive qualitative study design was employed. An open-ended semi-structured interview was conducted among ten mothers and interviews were recorded. Data were transcribed verbatim and analyzed thematically. Results Six themes were constructed namely, current practices, perceptions, challenges, ways to overcome the challenges, personal development and wishes and expectations. Conclusion Caregivers of children with cerebral palsy requiring food texture modifications may need assistance from family, healthcare professionals and society as they navigate these difficult situations and deal with a range of emotions when preparing food and feeding their children. To successfully feed their child and meet their nutritional needs, caregivers require additional support, mostly in the form of additional guidance and education on delivering nutrition that includes feeding provision.

Fields of Study & Subjects

Child Nutrition and Feeding Issues Family and Disability Support Research

Publication details

Journal / source
Heliyon
Publisher
Elsevier BV
Volume
12
Issue
14
Pages
e45300–e45300
Publication date
28 August 2026
Language
EN