Exploring health information and resource needs of women with epilepsy in Ireland from preconception to postpartum: A qualitative study

Many women with epilepsy (WWE) navigate complex decisions regarding their reproductive health. In order to support these women throughout the stages of preconception to postpartum, it is important they are equipped with the relevant information and resources. The current study used an inductive qualitative method to understand the experiences and perspectives of WWE navigating health information across the stages of preconception to postpartum in Ireland. Thirty-two WWE aged 20-50 years, who have received healthcare in Ireland, participated in an online narrative interview. Responses were analysed using Reflexive Thematic Analysis. WWE reported several important factors related to their information needs. Three themes were developed: 1) what I need to know, to know what to expect (i.e., WWE's need for information earlier to make informed decisions), 2) my information is impacted by access and support, and 3) my experiences impact whether I trust health information. Strategies to improve the timing and delivery of resources should be prioritised to increase the overall quality of communication of information for WWE to ensure their health needs are met.