From fragmentation to integration: the implementation of Kuwait’s nationwide pediatric intensive care units registry

BACKGROUND: The lack of centralized pediatric critical care data in Kuwait has limited benchmarking, outcome evaluation, and resource planning. This study describes the development and implementation of Kuwait's first nationwide PICU registry and evaluates its feasibility and early utility. METHODS: A centralized registry was implemented across seven governmental PICUs serving over 870,000 children. Demographics, diagnoses, interventions, outcomes, and infection data were retrospectively collected at discharge by site coordinators. Data were entered into a secure, encrypted platform using de-identified records and role-based access, with centralized validation performed every tercile. RESULTS: During the implementation phase, 2086 of 2364 admissions were captured. Registry accuracy compared with manual admission logs was 88.2%, demonstrating feasibility and data reliability. Inter-hospital variability in clinical practices and resource utilization was identified. The registry also enabled early detection of infection trends and supported proactive staffing and equipment planning. CONCLUSION: Kuwait's national PICU registry is feasible, reliable, and operationally effective. It addresses critical data gaps, enhances transparency, supports evidence-based decision-making, and provides a foundation for national quality improvement and future benchmarking initiatives. IMPACT: Demonstrates feasibility, reliability, and operational effectiveness of a national PICU registry in real-world pediatric critical care. Enables early detection of infection trends and supports strategic planning for staffing and equipment. Presents one of the first national PICU registry models in the Middle East, addressing fragmented data systems. Offers practical strategies for standardization, data validation, and inter-hospital coordination, supported by physician champions and stakeholder engagement. Bridges critical data gaps, strengthens quality monitoring and benchmarking, and provides a scalable framework for broader pediatric specialties and international research.