A call to develop rigorous standards for excellence in idiopathic intracranial hypertension: RISE-IIH

Idiopathic intracranial hypertension (IIH) is an increasingly prevalent condition characterised by raised intracranial pressure, papilloedema and headache with emerging evidence suggesting a systemic metabolic disorder [ 1 , 2 ]. People with IIH have cited challenges in their care and made recommendations in key areas such as communication regarding the relationship between weight management, disease development and remission [ 3 ]. A person with IIH may meet many specialists and therefore a coordinated standard approach to care is recommended [ 4 ]. The first consensus guidelines for IIH were published in 2018 but how these have translated into clinical practice remains largely unknown [ 4 , 5 ]. To understand what quality metrics are important to health care professionals, herein we summarised eight different audits that have been performed, all of which included standards selected from the IIH consensus guidelines [ 4 ].