Organising care for complexity: a pathways model for adult community intellectual disability services

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Authors: Rohit Shankar, Indermeet Sawhney, Samuel Joseph Tromans, Bhathika Perera, Laura Korb, Rory Sheehan, Heather Hanna, Niall O’Kane, Jana DeVilliers, Ganesan Rajagopal, Lance Vincent Watkins, Jane McCarthy
+7 more Richard A. Laugharne, Kiran N. Purandare, Regi Alexander, Ashok Roy, Asif Zia, Satheesh Kumar Gangadharan, Angela Hassiotis
Cited by: 1
References: 37

Abstract

pathway models have emerged as a potential mechanism to reconcile these aims yet remain under-used in care philosophies in intellectual disabilities. We propose a generalisable pathways model for community intellectual disability services and examine its implications for policy, clinical practice, and research. The model integrates care navigation, proportionate specialist input, and defined clinical condition care including behaviours that challenge, mental and physical health, forensics, neurodevelopmental conditions, epilepsy, and dementia within a community-based service architecture. It considers recent focus on digitalsation, prevention, workforce and practice innovation. The model aligns with contemporary policy priorities. We argue that pathway-based care delivery provides a pragmatic and ethically grounded framework for organising services. It supports consistency, integration, and preventative care while reducing reliance on reactive risk-based responses. By synthesising service design principles, core pathway functions, and system interfaces, this paper offers a coherent model for contemporary community intellectual disability services. Further empirical evaluation is required to assess the impact of care pathways on outcomes, patient experience, and cost-effectiveness.

Fields of Study & Subjects

Down syndrome and intellectual disability research Mental Health and Patient Involvement Healthcare innovation and challenges

Publication details

Journal / source
International Review of Psychiatry
Publisher
Informa UK Limited
Pages
1–12
Publication date
2 February 2026
Language
EN