Burden of informal caregiving for stroke survivors in the Philippines: a cross-sectional survey of sociodemographic and caregiving factors

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Authors: Aira Patrice Rueda Ong, Lancelot Lyle de Jesus, Sharon Linog, Lorraine Faeldon, Angela Logan, Alyssa Dar Juan, Sarah Ann Buckingham, Myrna Estrada, Elda Grace Anota, Maria Mercedes Barba, Bridie Kent, Jonathan Marsden
Cited by: 1
References: 63

Abstract

Purpose Stroke imposes significant burden on informal caregivers (ICs) in the Philippines, yet factors associated with caregiver strain remain unclear. This study examined sociodemographic and caregiving factors associated with burden among stroke ICs.Materials and methods A cross-sectional survey of 462 Filipino ICs collected sociodemographic characteristics, caregiver responsibilities and strain using the Modified Caregiver Strain Index-Filipino (MCSI-F). Data were analyzed using chi-square tests and ordinal logistic regression.Results Caregivers were predominantly female (75.3%), spouses/partners (47.8%), and economically disadvantaged (66.9%). Median MCSI-F score was 22 (IQR = 8), indicating no burden, while 11.9% reported severe strain. In the multivariable ordinal logistic regression model, work interference showed the strongest adjusted association with higher burden severity (aOR = 5.38, p < 0.001), followed by spousal relationship (aOR = 2.10, p = 0.028); male sex was protective (aOR = 0.34, p < 0.001), and providing 6 h/day) was associated with lower burden (aOR = 0.17, p = 0.004). Age, income, employment status, education, religion, and urban–rural residence were not significant after adjustment. Parallel lines held (p = 0.765), and Nagelkerke’s R2 was 0.231.Conclusions Filipino stroke ICs experience substantial strain primarily driven by work interference and intensive caregiving hours, with spouses and female caregivers disproportionately affected. Interventions should prioritize employment support for female spouses providing prolonged daily care.Implications for rehabilitationInformal caregivers of stroke survivors in the Philippines experience substantial burden, particularly when caregiving interferes with employment and requires intensive daily commitment.Female spouses providing prolonged daily care represent a particularly vulnerable group requiring targeted support from rehabilitation services.Rehabilitation teams should routinely assess caregiver work disruption and daily care hours as part of comprehensive stroke care planning.Employment-focused interventions, such as flexible appointment scheduling and liaison with employers, should be integrated into community-based rehabilitation programs to reduce work-care conflict.Rehabilitation professionals should prioritize training family caregivers in strategies that promote survivor independence and reduce intensive care demands over time.

Fields of Study & Subjects

Stroke Rehabilitation and Recovery Spinal Cord Injury Research Occupational Therapy Practice and Research

Publication details

Journal / source
Disability and Rehabilitation
Publisher
Informa UK Limited
Pages
1–18
Publication date
15 April 2026
Language
EN