‘Letting Sleeping Dogs Lie’ or Taking Action on Oral Care? A Qualitative Study With Informal Caregivers of Frail Home‐Dwelling Older Persons

OBJECTIVE: To explore informal caregivers' perspectives concerning support in oral care for frail home-dwelling older persons (FHOPs), while identifying their needs and barriers at the IC-FHOP as well as the IC-healthcare professional level. BACKGROUND: FHOPs' oral health is a global concern. Health determinants ranging from the individual up to the public policy level shape oral health. Informal caregivers' perspectives on these topics are underexamined for oral health, despite their key role in supporting FHOPs and connecting them to professional care. MATERIALS AND METHODS: Semi-structured interviews were conducted with informal caregivers of older adults from urban and rural areas in Flanders (Belgium), with a Groningen Frailty Index equal to or greater than 4. Interviews were recorded, transcribed, and analysed using a reflexive thematic approach. RESULTS: The sample comprised 19 informal caregivers (ICs) aged 53-87 years. Four themes were identified: (1) When words matter: the (un)spoken role of oral care in informal caregiving, (2) Balancing care and independence: the role of ICs in FHOPs' daily oral care, (3) Between necessity and accessibility: the role of ICs in FHOPs' dental visits, and (4) Ensuring oral health together: the collaboration with professionals. ICs' oral care involvement varied, influenced by knowledge, confidence, and support. CONCLUSION: This study emphasises the vital role of ICs in supporting FHOPs' oral care, yet they often lack role clarity, confidence, and guidance. Enhancing education and support for both ICs and healthcare professionals is essential to promote person-centred oral care and collaboration.