Moral Distress Among Family Caregivers: A Concept Analysis

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Authors: Tharaa Ananzeh, Caroline F. Morrison, Elaine Miller, Natalie Kreitzer, Tamilyn Bakas
Cited by: 6
References: 36

Abstract

AIM: To examine and define the concept of moral distress among family caregivers by identifying its key attributes, antecedents and consequences. DESIGN: Concept analysis. METHODS: This study was guided by Walker and Avant's concept analysis framework. A comprehensive literature search was conducted to identify relevant studies, with 12 articles included in this analysis. DATA SOURCES: PubMed, CINAHL, Scopus and PsycINFO databases were searched for articles published between February 2000 and May 2025. RESULTS: Three defining attributes of moral distress in family caregivers were identified: self-directed negative emotions, internal conflict and feelings of powerlessness and helplessness. Antecedents included caregiving burden, role conflict, ethical dilemmas, complex decision-making and internal and external constraints. Consequences encompassed long-term health effects, social withdrawal, burnout and moral residue. These findings led to a conceptual definition of moral distress in family caregivers. CONCLUSION: Moral distress in family caregivers is a significant and underrecognised issue that affects caregiver well-being and the quality of care they provide. This concept analysis offers a clear conceptual definition, providing a foundation for developing research instruments and interventions. IMPLICATIONS FOR THE PROFESSION AND/OR PATIENT CARE: Healthcare professionals should recognise moral distress in family caregivers as a key factor impacting both caregiver well-being and patient care. Support through education, counselling and peer groups can reduce moral distress and foster more ethical, collaborative care environments. IMPACT: This study addressed the lack of clarity surrounding moral distress in family caregivers. It identified key attributes, antecedents, and consequences, and developed a clear conceptual definition. These insights will inform research, practice and policy. The findings will benefit caregivers, improve patient care and support healthcare teams. REPORTING METHOD: This study followed Walker and Avant's framework and employed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guidelines in article selection. PATIENT OR PUBLIC CONTRIBUTION: No patient or public involvement.

Fields of Study & Subjects

Family Support in Illness Ethics in medical practice Family Caregiving in Mental Illness

Publication details

Journal / source
Journal of Advanced Nursing
Publisher
Wiley
Volume
82
Issue
8
Pages
7785–7802
Publication date
3 January 2026
Language
EN