Health Literacy and Unmet Needs in Patients With Multiple Sclerosis: A Cross‐Sectional Study

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Authors: Francesco Pastore, Barbara Forastefano, Valentina Simonetti, Tommaso Guerra, Giancarlo Cicolini, Pietro Iaffaldano, Dania Comparcini
Cited by: 1
References: 30

Abstract

ABSTRACT Aims To identify a correlation between unmet needs and HL levels in people with Multiple Sclerosis (pwMS) and to evaluate how sociodemographic characteristics influence HL levels and unmet needs. Design A cross‐sectional study. Methods The study was conducted using a questionnaire including the HLS 19 ‐Q12 to assess HL and the Long‐term Unmet Needs in Multiple Sclerosis tool, which evaluates five domains (neuropsychological, ambulation, physical, interpersonal relationship, and informational) and identifies whether needs are met or unmet and the desire for support. Results Among the 116 participants included in the study, the overall HL level was sufficient. Mean scores across unmet needs domains were comparable. A significant difference in HL emerged in the informational domain, where participants reporting informational needs and a desire for support showed higher mean ranks. Although not significant, participants who acknowledged a need and expressed a desire for help showed higher mean ranks in HLS 19 ‐Q12 scores across several domains. No significant correlations were found between HL and unmet needs domains. Conclusion HL levels may enhance patients' ability to recognize and express needs without necessarily ensuring that these needs are met. Implications for the Profession and/or Patient Care Routine assessment of both HL and unmet needs may help healthcare professionals identify patients who recognize problems but lack the structural support to address them. Impact The impact of HL on need recognition and communication, together with the complexity and interconnectedness of unmet needs, highlights the need for healthcare systems to implement organizational, systemic, and multidimensional interventions aimed at promoting HL and effectively addressing patients' needs. Such strategies may support better disease management and improve quality of life in pwMS. Reporting Method This study was reported according to STROBE checklist. Patient or Public Contribution None.

Fields of Study & Subjects

Multiple Sclerosis Research Studies Family Support in Illness Childhood Cancer Survivors' Quality of Life

Publication details

Journal / source
Journal of Clinical Nursing
Publisher
Wiley
Volume
35
Issue
11
Pages
4816-4827
Publication date
14 June 2026
Language
EN