Multidisciplinary Management of Epidermolysis Bullosa

Pediatric Dermatology 2026 Open access

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Authors: James Aaron Feinstein, Caitlin Cacioppo, Liliane Diab, Catherine Doernbrack, Devin M Godber, Shelly Heinrichs, Shekema Kunz, Mark P. Popenhagen, Carol Schober-Flores, Amanda I Stack, A. Bruckner
DOI: 10.1111/pde.70179
Cited by: 1
References: 8

Abstract

Epidermolysis bullosa (EB) impacts the skin and other organ systems, and the management of affected patients is complex and requires coordinated care. Severe EB simplex, junctional EB, and recessive dystrophic EB are effectively multisystem disorders affecting the epithelia and other organ systems with a range of complications. This article describes our center's approach to providing a comprehensive, holistic, and patient-centered approach to care of patients with EB in our multidisciplinary EB clinic. Teams from dermatology, pediatrics, occupational and physical therapy, nutrition, social work, and pain psychology work collaboratively to manage the cutaneous, extracutaneous, and psychosocial needs of these patients.

Fields of Study & Subjects

Skin and Cellular Biology Research Autoimmune Bullous Skin Diseases Genetic and rare skin diseases.

Publication details

Journal / source
Pediatric Dermatology
Publisher
Wiley
Volume
43
Issue
S2
Pages
56–61
Publication date
24 February 2026
Language
EN