Exploring Patient Experiences of Symptom Support From Healthcare Professionals in Acute and Chronic Illness: A Qualitative Study

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Authors: Malene Missel, Mary Jarden, Nanna Witting, Helle Pappot, Mai Nanna Schoenau, Maria Camilla Mathiasen, Camilla Corvinius, Pernille Orloff Donsel, Melissa J. Culligan, Giulia Locatelli, Karin Piil, Linda Kahr Andersen
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Abstract

BACKGROUND: Symptoms are a central part of living with illness, and healthcare professionals play a crucial role in supporting patients in the managing of these. Symptom support is not only about alleviating physical discomfort but also about addressing the subjective and existential dimensions of illness. Understanding how patients experience such support is essential for strengthening communication, dignity, and person-centred care. AIMS: This study aims to explore the meaning of patients' experience of support from HCP in managing symptoms, and how this meaning shapes their understanding of symptoms and subsequent strategies. METHODS: A qualitative design was applied. In-depth interviews were conducted with 10 patients diagnosed with acute or chronic illness and receiving care in hospital and outpatient settings. Data were analysed using a phenomenological hermeneutic approach inspired by Ricoeur. FINDINGS: Three themes were identified. Caught in the gaps of continuity in care describes how patients experienced symptom support as fragmented and inconsistent, shaped both by organisational structures and the professionals they encountered. Dialogue, relationship and professional knowledge as a vulnerable space highlights how encounters with healthcare professionals were perceived as fragile moments, where recognition, time, and competence could either foster trust or leave patients feeling exposed. Between silence and support in the healthcare encounter reflects how organisational structures and clinical routines often failed to address patients' concerns, creating silent spaces where symptoms and existential needs were overlooked. CONCLUSIONS: Patient experiences reveal how symptom support is shaped by both relational vulnerability and systemic fragmentation. When symptoms are overlooked, patients feel abandoned and burdened with coordinating their own care. Strengthening relational continuity, clarifying roles across professions explicitly to patients, and prioritising dialogue and empathy in clinical encounters are crucial steps toward ensuring person-centred symptom management that promotes dignity and well-being.

Fields of Study & Subjects

Patient-Provider Communication in Healthcare Patient Satisfaction in Healthcare Empathy and Medical Education

Publication details

Journal / source
Scandinavian Journal of Caring Sciences
Volume
40
Issue
1
Pages
e70210–e70210
Publication date
26 February 2026
Language
EN