Situating and repositioning disability within the blood donation context: Insights from 12 blood collection agencies

BACKGROUND: Diversity Equity and Inclusion initiatives in blood donation have progressed for priority groups such as ethnic minorities, men who have sex with men, and trans and diverse donors. However, advocacy for persons with disabilities (PWDs) in healthcare, especially in blood donation, remains slow. This study sought international perspectives on how Blood Collection Agencies (BCAs) define and engage with PWDs. METHODS: A survey was circulated to members of the Alliance of Blood Operators (ABO) and the Asia Pacific Blood Network (APBN). Responses were received from 13/15 members, with 12 consenting for their data to be published. RESULTS: All respondents reported including information about at least one form of disability in donor information, most commonly vision impairment, hearing, and mobility-related disabilities. Physical and sensory disabilities were more frequently recognized than cognitive disabilities. Most BCAs did not collect disability data. More than half reported having standard operating procedures about disability, but most lacked disability access and inclusion plans (DAIPS). Only three BCAs allowed PWDs to donate in wheelchairs. CONCLUSION: This study provides foundational insights into how BCAs conceptualize and respond to disability. Findings reveal discrepancies in definitions, accessibility implementations, and inclusion protocols. Despite some facilitating access for donors with mobility challenges or offering staff inclusion education, gaps remain in DAIPs, donor data on PWDs, and research. To promote equity and expand the donor pool, increased research focus on inclusive data tools and exploration of PWDs' lived experiences is recommended.