Governing real-world health data as a public utility

Science 2026

View at publisher
Authors: Melissa A. Haendel, Ryan Ahern, Kasie B. Bailey, Spyridon Bakas, Daniel C Barth-Jones, Alex Bohl, Jiang Bian, Philip E. Bourne, Rebecca Boyles, Christopher G. Chute, James J. Cimino, Shaun Grannis
+31 more Terry S. Hartman, Michelle Holko, Nathan A. Hotaling, Dan Housman, Lawrence Hunter, Eric Hurwitz, Jasmin Phua, Michael G. Kahn, Dario Kuzmanovic, Josh Lemieux, Johanna Loomba, Charisse Madlock-Brown, Kenneth D. Mandl, Raja Mazumder, Julie A. McMurry, Andrew J. McMurry, Zubin J. Modi, Richard A. Moffitt, Abu S. M. Mosa, Nicholas Messina, Shawn T. O’Neil, Josh F. Peterson, Emily R. Pfaff, Jimmy Phuong, Rachel Presskreischer, Lee Sanders, Abeed Sarker, Alastair Thomson, Kim M. Unertl, Anita C. Walden, Jim Weinstein
DOI: 10.1126/science.aeb1178
Cited by: 6
References: 10

Abstract

The utility model offers a framework for ethical stewardship, patient empowerment, and distributed innovation.

Fields of Study & Subjects

Electronic Health Records Systems COVID-19 Digital Contact Tracing Telemedicine and Telehealth Implementation

Publication details

Journal / source
Science
Publisher
American Association for the Advancement of Science (AAAS)
Volume
391
Issue
6789
Pages
993–996
Publication date
5 March 2026
Language
EN