Patient-centred care of cephalo-omphalopagus conjoined twins

View at publisher
Authors: Monica Ann Lutgendorf, Hannah Mugford, Dustin Kocol
Cited by: 0
References: 13

Abstract

Conjoined twins are rare, occurring in 1 in 250 000 live births, with cephalopagus twins reported in 1 in 3 000 000 live births. In cases of conjoined twins, early diagnosis is crucial for the health of the mother and pregnancy management and counselling. We present a case of cephalo-omphalopagus conjoined twins, with imaging findings, delivery considerations and patient-centred care recommendations. A patient in her 30s, gravida 2 para 0, was transferred to our care after an anatomical ultrasound demonstrated fusion of the fetal heads, chests and abdomens. Due to a complex congenital heart defect with a shared heart, the family was counselled on the anticipated prognosis and management options. Twin girls were delivered at 34+4 weeks via caesarean delivery, and the family was able to spend time with them as desired. This case demonstrates that prenatal diagnosis is helpful, and family involvement through patient-centred care and shared decision-making can improve perceived outcomes.

Fields of Study & Subjects

Assisted Reproductive Technology and Twin Pregnancy Congenital Anomalies and Fetal Surgery Ethics and Legal Issues in Pediatric Healthcare

Publication details

Journal / source
BMJ Case Reports
Volume
19
Issue
1
Pages
e267833–e267833
Publication date
1 January 2026
Language
EN