Family interventions in dementia mental health environments (FIND ME): a mixed-methods protocol

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Authors: Emma Wolverson, Juliet Gillam, Rosie Dunn, Juanita Hoe, Benjamin R. Underwood, Shadreck Mwale, Nicki Credland, Martin Robertson, Megan Wyatt, Rhiannon Lane, Katie Featherstone
Cited by: 0
References: 46

Abstract

INTRODUCTION: Admission to a mental health ward can be distressing for people living with dementia and their carers. While carer involvement is associated with improved outcomes, carers often report feeling excluded from decision-making and support during admissions. There is limited understanding of how wards engage with carers and what strategies might enhance involvement. This study seeks to address this gap by exploring carer and patient experiences during and after admission and co-producing evidence-based strategies for improved support and involvement. METHODS AND ANALYSIS: The FIND ME study uses a convergent parallel mixed-methods design. A national online survey will map provision of mental healthcare for people with dementia across the UK. Narrative interviews will be undertaken with carers of current inpatients (n=24) and recently discharged individuals (n=24), with opportunities for dyadic interviews with people with dementia. Ethnographic fieldwork across three wards (30 days per site) will provide insight into organisational cultures, staff practices and carer involvement. Evidence-based co-design workshops with carers, people with dementia and staff will use these findings to identify priorities and develop practical strategies for service improvement. Finally, a feasibility study will test the acceptability, relevance and potential for implementation of these co-designed strategies. Quantitative data will be analysed descriptively, while qualitative data will undergo narrative and thematic analysis. Triangulation across datasets will ensure rigour. ETHICS AND DISSEMINATION: Ethical approval has been granted by London Camberwell St Giles Research Ethics Committee and the Health Research Authority (REC Ref: 25/LO/0040). Informed consent will be obtained from all participants, with capacity assessed in line with the Mental Capacity Act (2005). Dissemination will include peer-reviewed publications, conference presentations and freely available multilingual resources for carers, people with dementia and ward staff, supported by NHS and third-sector partners. TRIAL REGISTRATION NUMBER: NIHR161439.

Fields of Study & Subjects

Family Caregiving in Mental Illness Dementia and Cognitive Impairment Research Mental Health and Patient Involvement

Publication details

Journal / source
BMJ Open
Volume
16
Issue
1
Pages
e110244–e110244
Publication date
1 January 2026
Language
EN