Transforming recognition into responsibility: moral obligations to informal caregivers in palliative care

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Authors: Michael Rechenmacher
Cited by: 1
References: 27

Abstract

Informal caregivers are widely recognised as part of the 'unit of care' in palliative care, yet this recognition has rarely been translated into clearly specified ethical obligations. The present paper argues that informal caregivers are not merely instrumentally relevant to patient-centred care but are independent moral stakeholders whose vulnerability grounds direct obligations of support. The analysis demonstrates that ethical obligations towards caregivers cannot be justified solely by reference to patient welfare. While many such duties are best understood as prima facie obligations, some reach the level of threshold obligations where caregivers' fundamental interests-such as autonomy, integrity or protection from serious harm-are at stake. The paper argues that the provision of support to informal caregivers should not be regarded as a discretionary component of good palliative care but a threshold requirement of ethically grounded palliative practice, with implications for clinical decision-making and institutional responsibility.

Fields of Study & Subjects

Family Support in Illness Palliative Care and End-of-Life Issues Patient Dignity and Privacy

Publication details

Journal / source
Journal of Medical Ethics
Publisher
BMJ
Pages
jme–2026
Publication date
30 April 2026
Language
EN