PP-5 Making the invisible visible’: identifying and responding to unpaid carers who experience domestic abuse from end-of-life care recipients

Introduction Many people at end-of-life (EOL) depend on an unpaid carer to support them. The burden of caring is well-documented and the role is often associated with poor health and adverse social and financial outcomes. Carers can also be at risk of domestic abuse from the person they care for. In England and Wales, one in ten domestic-homicide victims are female carers, with care-recipients perpetrating over 50% of cases. Health and social care professionals (HSCPs) often lack the understanding and confidence to support carers and improve their safety. Aims To improve understanding of the experiences and support needs of adult EOL carers and co-produce a resource for HSCPS to increase knowledge and confidence to enquire about and respond to domestic abuse towards carers. Methods A 24-month qualitative study using co-production, working in partnership with a Community of Practice comprising: HSCPs, specialist domestic abuse organisations, key public service representatives and people with lived experience. Following a review of the literature, interviews will capture carers’ experiences. Focus groups with HSCPs and other key stakeholders will explore their experiences and needs. Findings will inform co-development of guidance for HSCPs using co-production during online workshops. Data analysis will employ the Framework approach with an intersectionality lens to understand how marginalisation linked to social identities shapes domestic abuse experiences. Anticipated outcomes and Impact Outcomes will include guidance for HSCPs; policy recommendations; training resources; and dissemination materials. Outputs will Aim to enhance professional confidence in identifying and responding to domestic abuse, ultimately improving carer safety and wellbeing. This research will address a gap in understanding domestic abuse within EOL care relationships. By focussing on lived experience, the study will generate practical solutions to support an underserved population. Findings will inform national policy and practice, contributing to safer, more supportive EOL care environments.