PP-38 Understanding the needs of teenagers and young adults (TYAs) with cancer from their perspective

Introduction Evidence suggests that teenagers and young adults (TYAs) present a unique challenge for healthcare as they are at a key developmental stage which impacts on what they need, particularly when approaching end of life. Those with a chronic illness can find transitioning between paediatric services and adult services challenging if not planned and well-supported, and it is important we understand what is considered important for TYAs so that can deliver person-centred and bespoke care. Social media is intrinsically embedded in the lives of TYAs who use this to share their experiences of their cancer journey online and to leave a legacy. Aim The study explored the life stories of TYAs who were dying of cancer from their perspective. Method The study applied the principles of narrative analysis to vlogs posted on YouTube from six participants, all of which were TYAs with a diagnosis of cancer and at end-of-life. Results The Results demonstrated participants used social media as a way to develop their sense of self, to share their desire to feel ‘normal’, as a dragonfly effect (to inspire others) and to leave a legacy for their family and followers. Conclusion The study highlighted how TYAs use social media to cope with their illness, seek relationship support and leave a legacy. The TYAs highlighted the challenges of hope versus acceptance, anticipatory grief and their use of humour to cope. Impact The Impact of this research highlighted the need for health care professionals to develop more resources and knowledge to specifically understand and support TYAs with cancer. The role of health care professionals in supporting legacy work for TYAs requires further research. This is a clinical area which could be used to support personalised palliative care which supports emotional and psychological support for TYAs and their families.