PP-50 Co-designing a remote monitoring and support system for people with dementia near the end of life, their informal carers and health and care teams

Introduction End-of-life care for people with dementia is complex, often fragmented across home, hospital, and community services. Many individuals and their carers receive inadequate support, while professionals face challenges in recognising deterioration and coordinating care. Digital innovations such as remote monitoring systems may address these gaps but must be co-designed with the people who will use them. Aims To co-design and test a remote monitoring and support system (CARE-PAC) tailored to the needs of people with dementia near the end of life, their informal carers, and health and care professionals. Methods A participatory co-design approach will engage up to 30 participants across three groups: people living with dementia, informal carers (current and bereaved), and health/social care professionals. Through a series of workshops, the project will: Work collaboratively with all stakeholders across a series of co-design workshops to ensure CARE-PAC’s content is meaningful, useful and clinically appropriate Tailor CARE-PAC to the unique challenges of dementia at the end of life around recognising and managing symptoms, complex decision-making and high carer burden Ensure CARE-PAC is practical, supportive, and compassionate with a simple, tailored interface, real-time advice and guidance and person-focussed communication Results The project is underway. Anticipated outcomes include a final co-designed prototype that reflects the needs and priorities of all stakeholders, alongside evidence of usability in dementia end-of-life care. Conclusion Co-design of CARE-PAC will ensure it is practical, compassionate, and aligned with lived experience. Future testing in a pilot sample will explore how CARE-PAC performs in practice and its Impact on outcomes for people with dementia, carers, and care teams. Impact This work responds directly to top research priorities by improving personalised care, enhancing coordination, and offering scalable, flexible support for people with dementia and their carers at the end of life.