Disability-First AI Dataset Annotation: Co-designing Stuttered Speech Annotation Guidelines with People Who Stutter

Despite efforts to increase the representation of disabled people in AI datasets, accessibility datasets are often annotated by crowdworkers without disability-specific expertise, leading to inconsistent or inaccurate labels. This paper examines these annotation challenges through a case study of annotating speech data from people who stutter (PWS). Given the variability of stuttering and differing views on how it manifests, annotating and transcribing stuttered speech remains difficult, even for trained professionals. Through interviews and co-design workshops with PWS and domain experts, we identify challenges in stuttered speech annotation and develop practices that integrate the lived experiences of PWS into the annotation process. Our findings highlight the value of embodied knowledge in improving dataset quality, while revealing tensions between the complexity of disability experiences and the rigidity of static labels. We conclude with implications for disability-first and multiplicity-aware approaches to data interpretation across the AI pipeline.