Through mothers’ eyes: A qualitative exploration of raising a child with cystic fibrosis

This study aimed to explore the experiences and perceptions of mothers of children with cystic fibrosis. A qualitative phenomenological design was used. The study included 11 mothers selected via purposive sampling. Data were collected through in-depth individual interviews using a semi-structured interview form and analyzed with Braun and Clarke's six-phase thematic analysis using MAXQDA 2020. Four main themes and 15 sub-themes were identified: Living with Cystic Fibrosis, The Multidimensional Burden of Chronic Care, Psychosocial Adaptation and Coping Process, and Journey Through the Healthcare System. Cystic fibrosis creates a multifaceted burden-physical, psychological, financial, and social-affecting not only mothers but also other family members. While the diagnosis and treatment process is often challenging, some mothers experienced personal growth and developed coping strategies. Their experiences with the healthcare system varied, with both positive and negative encounters reported.