Qualitative Interview Training for Researchers with Lived Experience of Disabilities

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Authors: Caitlin Piccone, Tom Collier, Tiffany Dean, Jasmine Hague, Eric Enger, Becca Obuchowski, Hannah Sheets, Meghan M. Burke, Heather Michelle Aldersey
Cited by: 1
References: 17

Abstract

Involving people with disabilities (researchers with lived experience of disabilities) as members of research teams enhances the relevance of findings; however, existing research provides limited guidance on how to provide inclusive training on qualitative research methods. This brief report provides lessons learned from an inclusive research training focused on conducting qualitative interviews. The training was co-developed through a partnership between university-based researchers and a community-based organization supporting people with disabilities. Two individuals with moderate intellectual or developmental disabilities participated in the training. Following the training and interviews, five debrief sessions were held with all team members to reflect on the training process. Sessions were recorded, transcribed, and thematically analyzed to identify lessons learned. Findings highlight lessons learned before, during, and after the training: (a) ongoing collaboration and clear role-setting with the community partner, (b) providing accessible training materials, (c) establishing trust, (d) including a facilitator, (e) creating space for practice, (f) soliciting ongoing input, (g) finding supportive systems, and (h) conducting pilot tests. Successful inclusive research requires adequate time for practice, trust-building between team members, opportunities for feedback, and developing supportive systems.

Fields of Study & Subjects

Disability Rights and Representation Down syndrome and intellectual disability research Occupational Therapy Practice and Research

Publication details

Journal / source
Research and Practice for Persons with Severe Disabilities
Publisher
SAGE Publications
Publication date
15 June 2026
Language
EN