Safeguarding engagement with under-represented groups: Ethical considerations for mitigating fraudulent participation in health research

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Authors: Jenny Duong, Iqra Rahamatullah, Tristan Bilash, Caitlin Forbes, Sharon Hou, Brianna Henry, Sheila N. Garland, Jacqueline L. Bender, Perri R. Tutelman, Fiona S. M. Schulte
Cited by: 1
References: 40

Abstract

Members of under-represented, marginalized groups experience disparate health outcomes, warranting research that improves equitable engagement in research and subsequent care practices. However, in our online study conducted during the COVID-19 pandemic, we encountered systematic signs of fraudulent behavior corroborated by recent reports from other research teams, with differing approaches to mitigating fraudulent participation. We highlight our experiences during recruitment and pilot focus groups, along with our actions for mitigating further recruitment of fraudulent participants. Then, we synthesize our learnings with other scholars’ experiences to provide recommendations for the study development, recruitment, screening, and data collection stages of research. We also offer a critical analysis of current recommendations and their implications for reinforcing barriers to engaging under-represented groups in research. The recommendations provided emphasize the importance of preventing fraudulent participation in quantitative and qualitative research through adopting multiple strategies, while balancing considerations for meaningfully engagement with under-represented groups to ensure equitable and inclusive research.

Fields of Study & Subjects

Focus Groups and Qualitative Methods Social Media in Health Education Ethics in Clinical Research

Publication details

Journal / source
Research Ethics
Publisher
SAGE Publications
Volume
22
Issue
4
Pages
805-819
Publication date
22 May 2026
Language
EN