Navigating sexual health, fertility, and adult wellness in individuals with Duchenne muscular dystrophy: Current standards of care and future directions

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Authors: Nat Nasomyont, Amanda Appel, Susan Apkon, Janet Hoskin, Prasanth N. Surampudi, Natalie Truba, Gabriela Vargas, Aravind Veerapandiyan, C. B. Wood, Patrick Moeschen, Colin Werth, Alexandra Ahmet
+18 more Shipra Bansal, Lindsey Bratland, Janet L. Crane, Mélissa Fiscaletti, Rana Halloun, Kathi Kinnett, Carol Lam, Laura McAdam, Hugh J. McMillan, Meilan M. Rutter, Anne Marie Sbrocchi, Mena Scavina, Jaclyn Tamaroff, C Tian, Leanne Marie Ward, David R. Weber, SC Wong, Nora E. Renthal
Cited by: 1
References: 48

Abstract

Many adolescents and young adults with Duchenne Muscular Dystrophy (DMD) face challenges related to sexuality, relationships, and fertility, which can negatively impact their quality of life. Current clinical guidelines emphasize the need for healthcare providers to address these aspects. Yet, there remains a lack of robust data regarding the implications of DMD on sexual and reproductive health. This article highlights the essential psychosocial topics that require attention. By reviewing existing literature and focusing on gaps in care, we aim to foster future research directions that will enhance the management and support strategies for individuals with DMD, ultimately improving their quality of life.

Fields of Study & Subjects

Muscle Physiology and Disorders Neurogenetic and Muscular Disorders Research Organ and Tissue Transplantation Research

Publication details

Journal / source
Journal of Neuromuscular Diseases
Publisher
SAGE Publications
Pages
22143602261454423–22143602261454423
Publication date
13 July 2026
Language
EN