Experiences of Family Members Supporting Adults With Type 1 Diabetes: A Qualitative Study

PurposeThe purpose of the current study was to explore family members' experiences of how to support an adult person with type 1 diabetes (T1D).MethodsA qualitative descriptive study with thematic analysis was conducted in Sweden between 2020 and 2021. Interview transcripts were analyzed from 13 people who are a family member (≥18 years) of an adult with T1D, and inductive coding identified salient themes. Family members were recruited via social media, and their length of time as a family member to an individual with the T1D ranged between 3 and 38 years (median 24).ResultsThe analysis and coding identified 4 salient themes: (1) searching for knowledge in unfamiliar situations, (2) applying new knowledge in everyday life, (3) balancing support to fit need and situation, and (4) over time, the support role matures.ConclusionsFamilies with members with T1D are complex, with relational and behavioral challenges arising as the members live their lives. Routines, habits, and unexpected events become especially challenging for families with a member with T1D. Because most self-care activities for adults are carried out within the family, directly involving family members in educational interventions is important. These interventions should include providing information about the symptoms and treatment for T1D, developing knowledge about how families can be affected, but also providing strategies for how families optimally implement necessary daily changes.