Does clinic make for a smooth transition? - A retrospective service evaluation of a Sleep and Ventilation transition clinic

Background Research suggests that transitional care varies nationally and those with complex presentations do not always receive co-ordinated care across healthcare providers (NCEPOD, 2023). Aim Review patients accessing adult domiciliary Sleep & Ventilation services after transition from paediatrics, understand their attendance at transition clinic and adherence to prescribed nocturnal respiratory support. This will guide development of multi-site respiratory transition pathways. Method A retrospective service evaluation of n = 50 patients attending transition clinic in the last 5 years, across two collaborative, tertiary Sleep & Ventilation services. n= 29 excluded as did not transition or had incomplete adherence data. Results: erjor;12/suppl_17/113/F1 F1 F1 Conclusion: Our review found that transition clinic attendance was more common in those already adherent in paediatrics but attendance alone did not alter adherence post-transition. 58% of patients were excluded, with loss to follow-up rates higher in non-attenders. Reduced adherence in adult care may reflect reduced parental input, changes from paediatric practice or treatment fatigue. Further joint work along the pathway is needed to encourage better adherence in young people prior to transition. References NCEPOD The Inbetweeners 2023