A feasibility RCT protocol of the MATILDA intervention to support older adults with intellectual disability to improve their health and social networks

Read full text
Authors: Laurence Taggart, Angela Hassiotis, Assumpta Ann Ryan, Brendan P. Bunting, Carian O’Neill, Mike Clarke, Roger J. Stancliffe, Haleemah Ahmed, E. Kim, L Armstrong, A Hanna, S Willis
+3 more Brendan Leahy, J R Schofield, Allison Campbell
Cited by: 1
References: 33

Abstract

BACKGROUND: Older adults with an intellectual disability are at greater risk of increased social isolation, loneliness, and poorer quality of life compared to their non-disabled ageing peers. The MATILDA study aims to improve health and social networks by facilitating older adults with an intellectual disability to engage in their local mainstream community group. METHODS: The 30-month project is a 2-arm, single-blind, randomised feasibility RCT with 1:1 allocation, being conducted in Northern Ireland and London, England. We are aiming to recruit 64 older adults with an intellectual disability (aged 45 plus) who will be randomised to either the MATILDA intervention or an active control group alongside usual care. We will assess feasibility outcomes (i.e. recruitment, acceptability of intervention, retention, etc.). We will also conduct a process evaluation using the Normalisation Process Theory to identify any solutions and challenges in implementing the MATILDA intervention in local community groups. DISCUSSION: This is a novel, naturalistic experiment, low-cost community intervention that supports older adults with intellectual disability to engage in local community groups. This study builds upon our earlier work in exploring how older adults with intellectual disability age, engage in local community activities, and what are the enablers and barriers to facilitators in joining local community groups. TRIAL REGISTRATION: ISRCTN, ISRCTN15294181 . Registered 20th December 2022.

Fields of Study & Subjects

Down syndrome and intellectual disability research Disability Rights and Representation Mental Health and Patient Involvement

Publication details

Journal / source
Pilot and Feasibility Studies
Publisher
Springer Science and Business Media LLC
Volume
12
Issue
1
Publication date
18 February 2026
Language
EN