Online information on bowel resection for Crohn’s disease

Introduction Most patients with Crohn’s disease (CD) have at least one bowel resection during their lifetime. Patients considering surgery will probably look for information online, as is common practice among patients with chronic illnesses. The aim of this systematic review is to assess the quality and readability of web-based patient information on bowel resection for CD. Methods Google was searched using predefined search terms, developed with input from patient experts. For each term, results from the first two pages were screened for eligibility. Patient-focused websites on bowel resection for CD were included. The quality of the information was assessed using the DISCERN tool, and the readability with the Flesch–Kincaid ease of readability (FK) score. The accessibility adjustments of websites were also assessed. Results Of the 118 sources identified, 91 were excluded and 27 sources were analysed. One-third (n = 10) did not discuss the different types of resections. Ileocolic resection (the most commonly performed resection) was described in eight sources. Discussion of management post-resection (n = 6) and of lifestyle changes (n = 11) was sparse. There were some instances of factually incorrect information. The mean DISCERN score was 3.1 ± 0.80 (range 1–5), indicating moderate quality information. The mean FK score was 51.9 ± 8.70 (corresponding to patients requiring A levels or equivalent to fully understand the text). Conclusions The study findings highlighted the limitations of the current online patient information surrounding bowel resection in CD. The involvement of patients, working alongside professional bodies and clinicians, in the development of health-related websites is recommended.