Lessons learned from implementing FAIRification workflows in diabetes research in Germany

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Authors: Esther Thea Inau, Angela Dedié, Ivona Anastasova, Renate Schick, Brigitte Fröhlich, Michael Roden, Andreas L. Birkenfeld, Martin Hrabě de Angelis, Martin Preusse, Dagmar Waltemath, Atinkut Alamirrew Zeleke
Cited by: 0
References: 60

Abstract

The FAIR principles guide data stewardship towards maximizing the value of scientific data while offering a high level of flexibility to accommodate differences in standards and scientific practices. Research communities have developed and implemented domain-specific workflows to make their data FAIR. This work compares the implementation of two externally developed structured FAIRification workflows-a generic workflow and a domain-specific workflow- using the example of metadata captured in diabetes research in Germany and applying the FAIR data maturity model developed by the Research Data Alliance. Interestingly, the implementation of both workflows required similar resources and led us to achieve the same FAIRness rating. We therefore conclude that the adaptations made in the FAIRification workflow for health research data improve efficiency but do not necessarily lead to higher FAIRness scores when applied to core data sets. Based on the results of our workflow comparison, we identified a list of requirements that should be met for the FAIRification of a core data set regardless of the workflow employed. In the future, FAIR data strategies and infrastructure should be planned and implemented as early as possible in the FAIRification journey. It is anticipated that this comparative analysis will help establish standard operating procedures for the FAIRification of core data sets for health studies.

Fields of Study & Subjects

Research Data Management Practices Scientific Computing and Data Management Data Analysis and Archiving

Publication details

Journal / source
PLOS Digital Health
Volume
5
Issue
1
Pages
e0001139–e0001139
Publication date
13 January 2026
Language
EN