Moving beyond the empty cell: The threat of decontextualized healthcare data

Read full text
Authors: Aya El Mir, Eric Bezerra de Sousa, Ignacio Mesina-Estarrón, Leo Anthony Celi, Moad Hani, Mohammed Benjelloun, Neha Nageswaran, Saïd Mahmoudi, Shaheen Siddiqui, Sreeram Sadasivam, William Mitchell
Cited by: 3
References: 36

Abstract

Missing, inaccurate, or poorly documented data in healthcare is often treated as a technical problem to be statistically resolved via imputation, deletion, or modeling assumptions about randomness. However, such inaccuracies relate to far more complex socioeconomic and geopolitical issues, rather than "errors of data entry" to be ameliorated with statistical modeling techniques. We outline that what is really missing or inaccurate is the context in which the data is collected-and that only by understanding this context can we begin to prevent artificial intelligence's (AIs) amplification of misleading, decontextualized data. We critically examine how traditional modeling methods fail to account for the factors that influence what data gets recorded, and for whom. We show how AI systems trained on decontextualized data reinforce health inequities at scale. And, we review recent literature on context-aware approaches to understanding data, that incorporate metadata, social determinants of health, fairness constraints, and participatory governance to build more ethical and representative systems. Our analysis urges the AI and healthcare communities to move beyond the traditional emphasis on statistical convenience, toward socially grounded and interdisciplinary strategies for handling decontextualized data.

Fields of Study & Subjects

Machine Learning in Healthcare Data-Driven Disease Surveillance Ethics and Social Impacts of AI

Publication details

Journal / source
PLOS Digital Health
Publisher
Public Library of Science (PLoS)
Volume
5
Issue
1
Pages
e0001194–e0001194
Publication date
13 January 2026
Language
EN