Evaluating the perceived outcome and impact of an integrated knowledge translation approach in the development of an equity reporting guideline: A cross-sectional survey

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Authors: Jessica Brown, Omar Dewidar, Catherine Chamberlain, Luis Gabriel Cuervo, Holly North Ellingwood, Sonya Faber, Cindy Xin Feng, Damian Francis, Sarah Funnell, Elizabeth Tanjong Ghogomu, Billie-Jo Hardy, Tanya Horsley
+23 more Mwenya Kasonde, Michelle Kennedy, Tamara Kredo, Julian Little, Michael Johnson Mahande, Zack Marshall, Lawrence Mbuagbaw, Miriam Nkangu, Ekwaro Anthony Obuku, Oyekola Oloyede, Ebenezer Owusu‐Addo, Tomás Pantoja C, Kevin C Pottie, Anita Rizvi, Larissa Shamseer, Beverley Shea, Janice Tufte, Peter Tugwell, Zulfiqar Ahmed Bhutta, Charles Shey Wiysonge, Luke Wolfenden, Janet Jull, Vivian Andrea Welch
Cited by: 0
References: 29

Abstract

Integrated knowledge translation (IKT) involves active engagement of knowledge users in co-producing research, ensuring their perspectives shape study design, analysis, and reporting. This can strengthen justice, equity, diversity, and inclusion (JEDI) considerations. We adopted an IKT approach in developing STROBE-Equity, an equity-focused reporting guidelin extension. The perceived value of embedding JEDI principles in reporting guideline development is unknown. This study examines the team's perceptions on the implementation of the JEDI-enhanced IKT process and its influence on the guideline. We conducted a cross-sectional survey of STROBE-Equity project members (n = 68) between July-August 2024. The 19-item survey assessed disciplinary background, participation, and perceived benefits, challenges, and potential impacts of the JEDI-enhanced IKT approach. Inductive content analysis was used to identify themes, which were quantified with frequencies and percentages. Thirty-one members responded. Most were aged 35-54 (61%), female (55%), based in Canada (35%), and trained in epidemiology (61%). Reported benefits of IKT included integrating diverse perspectives, inclusive representation, and collaborative learning. Challenges involved accessibility and accommodations, consensus-building, and navigating power dynamics between researchers, policymakers, and those with lived experience. Participants perceived that IKT broadened the understanding of social conditions in the development process and facilitated incorporation of end-user perspectives, which they believed would strengthen the credibility and applicability of the guideline. They also noted that this collaborative approach would likely enhance the dissemination and uptake of STROBE-Equity and enhance its acceptability moving forward. A JEDI-enhanced IKT approach was viewed as beneficial to the development of the reporting guideline. Challenges such as accessibility and balancing power dynamics highlight areas where the participatory process could be improved. Future research should continue to refine and evaluate inclusive approaches to guideline development to further advance JEDI in research.

Fields of Study & Subjects

Health Policy Implementation Science Meta-analysis and systematic reviews Mental Health and Patient Involvement

Publication details

Journal / source
PLOS Global Public Health
Volume
6
Issue
1
Pages
e0005854–e0005854
Publication date
27 January 2026
Language
EN