Caregiver burden in children with medical complexity: an approach based on the identification of associated factors

Revista Paulista de Pediatria 2026 Open access

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Authors: Fernando Sarin da Mota e Albuquerque, Danton Matheus de Souza, Lídice Valeriana Oliveira Diop, Ana Paula Scoleze Ferrer
DOI: 10.1590/1984-0462/2026/44/2025260
Cited by: 1
References: 20

Abstract

OBJECTIVE: The aim of this study was to identify factors associated with increased caregiver burden of children with medical complexity and to guide management strategies. METHODS: This cross-sectional study was conducted in a specialized service for patients with complex chronic conditions. Caregiver burden was assessed using the Zarit Burden Interview, which measures subjective burden, encompassing emotional, social, and personal impacts associated with caregiving, and is categorized as mild, moderate, or severe according to the total score. Bivariate analyses used chi-square tests, followed by multivariable Poisson regression with robust variance estimation, with results expressed as prevalence ratios (PRs) and 95% confidence intervals; p

Fields of Study & Subjects

Childhood Cancer Survivors' Quality of Life Adolescent and Pediatric Healthcare Family and Disability Support Research

Publication details

Journal / source
Revista Paulista de Pediatria
Publisher
FapUNIFESP (SciELO)
Volume
44
Pages
e2025260–e2025260
Publication date
1 January 2026
Language
EN