How Endometriosis Is Lived and Told: A Metaethnography of Autoethnographies

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Authors: Angie Course, Lisa Glaum, Jana Niemann, Milena von Kutzleben
Cited by: 0

Abstract

Autoethnographies as illness narratives have become increasingly popular in recent decades, particularly due to the postmodern crisis of subjectivity. Autoethnographies offer researchers an opportunity to question the researcher-subject relationship and provide insight into their most subjective knowledge and experiences. This makes it possible to reproduce knowledge about the experience of chronic diseases such as endometriosis and make it available to the scientific community, which is difficult to achieve using other survey methods. In this article, we use meta-ethnography to examine autoethnographies about endometriosis from the perspective of people with endometriosis. To do this, we first conduct a review, which is classified using social science theories. The content is then examined meta-ethnographically.

Fields of Study & Subjects

Endometriosis Research and Treatment Qualitative research in health Qualitative Research Methods and Ethics

Publication details

Publication date
1 January 2026
Document type
Preprint