Quality of life and coping strategies among caregivers of children with thalassemia major in Southern Rajasthan
Abstract
Background: Thalassemia major (TM) is a chronic hereditary blood disorder requiring lifelong transfusions and chelation therapy, imposing a substantial physical, psychological, social, and financial burden on caregivers. Assessing caregivers’ quality of life (QoL) and coping strategies is essential to understanding their adaptive functioning and identifying areas requiring psychosocial support. To evaluate the quality of life and coping strategies among caregivers of children with thalassemia major attending a tertiary care hospital in Southern Rajasthan. Methods: A cross-sectional study among 140 caregivers of children with thalassemia major used a structured questionnaire with sociodemographic data, WHOQOL-BREF, and brief COPE. Data were analyzed using descriptive statistics, chi-square, and ANOVA, with p
Fields of Study & Subjects
Hemoglobinopathies and Related Disorders
Nursing care and research
Family and Disability Support Research
Publication details
- Journal / source
- International Journal of Contemporary Pediatrics
- Volume
- 13
- Issue
- 2
- Pages
- 226–232
- Publication date
- 27 January 2026