Quality of life and coping strategies among caregivers of children with thalassemia major in Southern Rajasthan

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Authors: Rita Dindor, Rajendra Chandel, Neetu, Deepika Kalasua Kalasua, Priyanka Bhardwaj, Jyoti Ahuja
Cited by: 0
References: 21

Abstract

Background: Thalassemia major (TM) is a chronic hereditary blood disorder requiring lifelong transfusions and chelation therapy, imposing a substantial physical, psychological, social, and financial burden on caregivers. Assessing caregivers’ quality of life (QoL) and coping strategies is essential to understanding their adaptive functioning and identifying areas requiring psychosocial support. To evaluate the quality of life and coping strategies among caregivers of children with thalassemia major attending a tertiary care hospital in Southern Rajasthan. Methods: A cross-sectional study among 140 caregivers of children with thalassemia major used a structured questionnaire with sociodemographic data, WHOQOL-BREF, and brief COPE. Data were analyzed using descriptive statistics, chi-square, and ANOVA, with p

Fields of Study & Subjects

Hemoglobinopathies and Related Disorders Nursing care and research Family and Disability Support Research

Publication details

Journal / source
International Journal of Contemporary Pediatrics
Volume
13
Issue
2
Pages
226–232
Publication date
27 January 2026