Exploring the role of family support in enhancing the quality of life of adults with intellectual disabilities

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Authors: Thompson Rachel A, Nguyen David K, Blackwood Sarah M, Faulkner James R
Cited by: 0

Abstract

A statistic that often gets overlooked: nearly 68% of adults with intellectual disabilities in Canada report that family members are their primary source of daily support. Yet surprisingly little research has examined how this support actually translates into measurable quality of life outcomes. This research addressed that gap by surveying 312 adults with intellectual disabilities (aged 19 to 54) across four provinces in Canada. Participants were grouped by the level of family support they received classified as low (n = 87), moderate (n = 114), or high (n = 111) based on a validated Family Support Index developed for this research.Quality of life was assessed across four domains: physical well-being, emotional well-being, social participation, and material well-being. The results were striking. Adults receiving high family support scored 74.6 on physical well-being compared to 51.8 for those with low support. Emotional well-being showed a similar pattern (73.2 vs. 48.3). Social participation scores were 71.8 for the high-support group versus 44.7 for the low-support group. Material well-being, while still significantly different, showed a narrower gap (69.4 vs. 53.2).Path analysis revealed that self-determination mediated the relationship between family support and quality of life, accounting for 34.7% of the variance. Emotional support emerged as the strongest predictor of overall quality of life (β = 0.34, p

Fields of Study & Subjects

Family and Disability Support Research Down syndrome and intellectual disability research Disability Education and Employment

Publication details

Journal / source
International Journal of Intellectual Disability
Volume
7
Issue
1
Pages
15–20
Publication date
1 January 2026
Language
EN