Effectiveness of an Educational Intervention on Parental Knowledge in Management of Children with Beta Thalassemia

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Authors: Nilamadhaba Panda, Jyoti Ranjan Behera, Snigdha Rani Panigrahy, Sadhana Panda, Bharata Chandra Choudhury, Narendra Behera
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Abstract

Introduction: The study evaluate the impact of an educational intervention on the knowledge, attitude, and practice (KAP) of parents of children with beta thalassemia. The study involved 147 participants, providing a comprehensive overview of how targeted educational efforts can enhance understanding and management of the disease. Overall, the study emphasizes the value of education as a tool for enhancing health literacy and promoting proactive health behaviours among parents of children with beta thalassemia. By continuing to invest in and develop such educational initiatives, we can significantly improve the quality of life for affected families and contribute to better disease management and prevention strategies. Material And Method: A hospital based Prospective Quasi-experimental Pre- Post test design to evaluate the Effectiveness of an educational intervention. Beta-thalassemia Children of age 6 month to 14 years with their parents (care giver) presented to MKCG Medical College & Hospital for regular blood transfusion This prospective quasi-experimental study was conducted in the department of paediatrics, MKCG, MCH, Berhampur from the period of October 2022 to September 2024. Study population included parents or care givers of thalassemia children of age group 6 month to 14 year. Result: More number of questionnaire regarding KAP about thalassemia will helpful on strength of the study. Scoring or Grading of KAP could may give more light on the performance of the Study. Long term follow up will yield better result in assessing KAP of thalassemia parents. Smaller sampling size will give more bias in the study and large size of the sample will give better result in KAP assessment regarding thalassemia. Conclusion: Study concludes; More significant improvement of knowledge of parents and care givers observed in different aspects regarding thalassemia disease like about general awareness, symptoms, disease transmission, screening and diagnosis and healthy living and treatment. Overall, the study emphasizes the value of education as a tool for enhancing health literacy and promoting proactive health behaviours among parents of children with beta thalassemia. By continuing to invest in and develop such educational initiatives, we can significantly improve the quality of life for affected families and contribute to better disease management and prevention strategies.

Fields of Study & Subjects

Hemoglobinopathies and Related Disorders Nursing care and research Health Education and Validation

Publication details

Journal / source
International Journal of Current Pharmaceutical Review and Research
Volume
18
Issue
1
Publication date
25 January 2026
Language
EN