Voices of Resilience: Lived Realities and Challenges of Caregivers for Cancer Patients Receiving Palliative Care – A Qualitative Perspective

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Authors: Ayushi Sood, Shruti, Sapna Sharma, Kaur, Minni Arora
Cited by: 1
References: 16

Abstract

Objective: The objective of this study was to explore the lived experiences of family caregivers of cancer patients receiving palliative care in a hospice setting. Materials and Methods: A qualitative phenomenological study was conducted among 15 primary caregivers at a hospice in Chandigarh, India. Participants were selected through purposive sampling. Data were collected through in-depth, face-to-face interviews using a pre-validated interview schedule. Colaizzi's seven-step framework was used for data analysis. Results: The study revealed profound emotional, physical, financial and social challenges experienced by caregivers. Seven major themes emerged: emotional and psychological response to caregiving, physical and lifestyle impact, financial struggles, occupational disruption, spiritual and cultural aspects, social support and barriers and knowledge gaps. These reflect the cumulative burden caregivers carry as they navigate caregiving responsibilities in the end-of-life caregiving context. Conclusion: Caregivers of cancer patients in palliative care face intense and complex challenges that require acknowledgement and structured support. Integrating caregiver-focused interventions into palliative care is essential for holistic, patient and family-centred care.

Fields of Study & Subjects

Cancer survivorship and care Palliative Care and End-of-Life Issues Family and Patient Care in Intensive Care Units

Publication details

Journal / source
Indian Journal of Palliative Care
Publisher
Scientific Scholar
Volume
32
Issue
1
Pages
78–84
Publication date
10 February 2026
Language
EN