2026-01 Involvement of Children and Young People in Longitudinal Health Research Working Paper

This knowledge-sharing exercise with longitudinal cohort studies globally, driven by Generation Victoria (GenV) and the Born in Scotland (BiS) Data Trust, considered the involvement of children and young people (and/or their representatives) in the design and governance of health research. This paper builds on the broader literature, filling the gap of unpublished experience and providing insights into the strategies and learnings of consumer and community involvement for longitudinal research and birth cohort studies.