Readability of patient-reported outcome measures (PROMs) in genetic counseling research: extracted PROMs data

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Authors: Sarah Huang, Chenery L. Lowe
Cited by: 0

Abstract

Extracted data from Qualtrics form of readability assessment of PROMs utilized in genetic counseling research. Extracted variables for each PROM (total 68) include: DOI/link, PROM text source, year published, country published, if it was adapted from another PROM, length/# of items, genetics-focused or not, knowledge focus or not, other genetic counseling category, validation study population, readability reported or not, delivery method, SMOG and FK reading grade levels for instructions and items, and additional comments made by the research team.

Fields of Study & Subjects

Health Literacy and Information Accessibility Health Education and Validation Text Readability and Simplification

Publication details

Journal / source
Stanford Digital Repository
Publication date
31 January 2026
Document type
Dataset