Challenges to continuity of care among patients with long COVID-related taste and smell disorders: a qualitative study

Taste and smell disorders are predominant symptoms of acute SARS-CoV-2 infection and can persist in individuals with post-acute sequelae of SARS-CoV-2 infection (PASC), commonly referred to as Long COVID. These sensory impairments continue to significantly affect daily life and wellbeing, yet clinical understanding and care strategies remain insufficient. There is an ongoing need to address the specific healthcare requirements of this population. The aim of this study was to describe the experiences and perceptions of individuals with Long COVID related taste and smell disorders regarding symptom management and the challenges affecting continuity of care. A qualitative descriptive study was conducted in 2024 in the Community of Madrid (Spain) using purposive sampling. Data were collected through in-depth interviews and analyzed using thematic analysis, an approach appropriate for examining patient experiences in healthcare. Twelve participants with previously confirmed SARS-CoV-2 infection and persistent loss and/or impairment of taste and smell were interviewed. Four themes were identified: (a) Implications of Long COVID taste and smell disorders, (b) Expectations regarding prognosis and symptom cure, (c) Professional approach and symptom management, (d) Barriers and facilitators to continuity of care. Findings highlight the clinical and social relevance of taste and smell disorders in Long COVID and illustrate how qualitative methods can capture patient perspectives that may inform future mixed-methods research.