Patient and Public Involvement and Engagement Toolkit

This toolkit is intended as a resource to support the establishment of Patient and Public Involvement and Engagement (PPIE) initiatives within health research teams and projects. While focused on South Asia and experiences from the Critical Care Research Group (CCRG) of Ziauddin University in Pakistan, the toolkit provides useful resources and guidance for anyone seeking to involve patients, their families and members of the public in health research. The toolkit is divided into an introduction, 10 chapters, conclusion and 16 appendices. The introduction defines PPIE and describes a national PPIE network for which the toolkit was originally created. The first chapter gives an overview of establishing a PPIE initiative with subsequent chapters offering guidance for every step in the process. The advice provided in this toolkit is based on the experiences of our group in establishing the first-ever PPIE group in Pakistan to support trials, supporting the formation of PPIE groups at other institutions across Pakistan and South Asia, and learning from global engagement initiatives. Any suggestions for improvements are welcome. Feel free to amend and adapt all aspects of this toolkit for your own purposes in any way you wish, however, make sure to appropriately credit the creators as per the license below. Do not hesitate to get in touch with us a ppie@zu.edu.pk.