Culturally Adapted Mobile Treatment of Chronic Pain in Adolescent Survivors of Pediatric Bone Sarcoma

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Authors: Brinkman, Tara, Chiara Papini
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Abstract

This is the dataset of the study "Culturally adapted mobile treatment of chronic pain in adolescent survivors of pediatric bone sarcoma" (PI, Dr. Tara Brinkman). The dataset includes the survey data collected before and after a pilot intervention from the participating adolescents and their parents. To ensure deidentification for sharing purposes, participants’ birth date and Rural-Urban Commuting Area (RUCA) Codes were not reported, and age was rounded to whole years. The composite T-scores of the PROMIS measures were calculated using the conversion tables available on the Health Measures website (https://www.healthmeasures.net/index.php). The data dictionary is in line with the Common Data Elements (CDE) Program of the NIH HEAL initiative. Please cite this repository in any communications or publications arising directly or indirectly from these data. Funding The study was supported by the National Institute of Neurological Disorders and Stroke, National Cancer Institute, and NIH HEAL Initiative (1R61CA280978-01, Brinkman). Support to St. Jude Children’s Research Hospital was also provided by the National Cancer Institute Cancer Center Support (CORE) Grant (P30 CA21765, Roberts) and the American Lebanese Syrian Associated Charities.

Fields of Study & Subjects

Pediatric Pain Management Techniques Childhood Cancer Survivors' Quality of Life Cancer survivorship and care

Publication details

Journal / source
Zenodo (CERN European Organization for Nuclear Research)
Publication date
15 January 2026
Document type
Dataset