Anonymized quantitative dataset of caregivers of children with Cerebral Palsy in Spain

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Authors: Clàudia Arumí-Trujillo
Cited by: 0

Abstract

This dataset contains anonymized quantitative data collected from caregivers of children with Cerebral Palsy in Spain as part of a mixed-methods study protocol. The data were collected during the quantitative phase of the study and were used to assess caregiver burden, perceived stress, and quality of life. The dataset includes sociodemographic characteristics of caregivers, child-related variables (e.g., age group, GMFCS level, type of Cerebral Palsy), and questionnaire scores from the Zarit Burden Interview (ZBI), the Perceived Stress Scale (PSS-14), and the PedsQL™ Family Impact Module (total and subscale scores). All data have been fully anonymized in accordance with ethical approval and data protection regulations. No direct or indirect personal identifiers are included. Qualitative interview data are not part of this dataset and will be shared upon completion of the study, as stated in the study protocol. This dataset is provided to support transparency and reproducibility of the quantitative analyses reported in the associated manuscript.

Fields of Study & Subjects

Family and Disability Support Research Cerebral Palsy and Movement Disorders Nursing care and research

Publication details

Journal / source
Zenodo (CERN European Organization for Nuclear Research)
Publication date
30 January 2026
Language
ES
Document type
Dataset