Data and code for 'FAIR with FHIR: A Proposed Workflow for Retrospective FAIRification of FHIR-Compliant Health Data'

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Authors: Femke Heddema, César H. Bernabé, Ihure Chris, D. Kapitan, Marco Roos
Cited by: 0

Abstract

This record contains the data and code accompanying the paper "FAIR with FHIR: A Proposed Workflow for Retrospective FAIRification of FHIR-Compliant Health Data". This record is organized as follows: -- "(Ontologised) Anonymised Data": this file contains access instructions to the anonymised DuckDB data, and the Docker/Ontop configuration files for accessing the contents of a dump from DuckDB transformed into RDF (augmented with domain relevant ontologies). -- "dataaccess.md": contains relevant information about the PharmAccess Data Access Committee. -- "FAIRwithFHIR_MomCare_metadata.png" and "metadata.ttl": depict the PharmAccess anonymised patient registry metadata model and its instantiated implementation, respectively. -- "IPSplus_FHIR_profile_specification.pdf": describes the IPS+ FHIR profile used as the foundational data model of the MomCare dataset. -- "FAIRwithFHIR_implementation_guide.pdf": provides the action-by-action description of the FAIR implementation, with worked examples. -- "README.md": overview of the repository and usage notes.

Fields of Study & Subjects

Research Data Management Practices Electronic Health Records Systems Semantic Web and Ontologies

Publication details

Journal / source
Zenodo (CERN European Organization for Nuclear Research)
Publication date
16 February 2026
Language
EN
Document type
Dataset