Dataset of :"General consent: an observational and patient inclusive approach to explore different information strategies"

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Authors: Cindy Allenbach, Naomi Kramer, Jennifer L. Zaslona, Mireille Moser, Marie-Josée Crevier, Marc Froissart, Béatrice Schaad
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Abstract

# In version 2: The datadictionary has been updated, broad consent has been changed into general consent. Data set of this article: Table 1: Retrospective_administrative_Data Data collected from December 2012 to April 2022, extracted from 3 existing institutional administrative databases by the CHUV IT division team. The file consists of retrospective administrative data from 204.004 adult patients informed about General Consent Table 2 and 3: Prospective_Questionnaire_V1_data and Prospective_Questionnaire_V2_data Data obtained from 2.445 anonymized questionnaires. Data from the paper questionnaires were manually entered into an electronic REDCap database. The questionnaire was anonymous Table 4: Patient_Communications_Data Data obtained via hotline phone calls, e-mails and patient letters received at the RCU during the period from May 15, 2020, to March 7, 2023, were analyzed – a total of 4.737 patients’ communications

Fields of Study & Subjects

Ethics in Clinical Research Ethics and bioethics in healthcare Electronic Health Records Systems

Publication details

Journal / source
Zenodo (CERN European Organization for Nuclear Research)
Publication date
5 February 2026
Language
EN
Document type
Dataset