D8.6: Public report on the governance of the IDEA-FAST platform

This report, on the governance of the IDEA-FAST Data Management Platform (DMP), is a Deliverable of the IMI research consortium formed to find digital endpoints that provide reliable, objective and sensitive evaluation of fatigue, sleep problems and activities of daily living (ADL) for several immune-mediated inflammatory diseases(IMID) and neurodegenerative diseases (NDD). The report describes the purpose, governance and development of the DMP, the data management and the data flows from multiple research institutes and datasets that have emerged during the IDEA-FAST project. The DMP has been developed and expanded during the project by ICL to support the research performed in the context of the IDEA-FAST Project. FAIR principles, informed consent of participants, and patient-centeredness were considered during the process of the DMP development.